Alport Syndrome Foundation
Alport Syndrome Foundation
Blog Post

New blog articles detected.

  • Sharon’s Story
    My brother, Paul, and I were diagnosed with Familial Nephritis or Hematuria when we were around 4 years old. For me, this meant regular doctor‘s visits where they monitored my bodily fluids for protein and creatinine. For my brother, this meant kidney failure at 16... The post Sharon’s Story appeared first on Alport Syndrome.
Alport Syndrome Foundation
Alport Syndrome Foundation
Blog Post

New blog articles detected.

  • 2016 Paul Silver Tribute Award
    ASF is pleased to offer the Paul Silver Tribute Award each year to young people in the Alport Syndrome community. Winners are chosen based on several criteria, including the quality of their essay and the purpose and potential impact of the award. ASF is delighted to announce the recipients of the 2016 Paul Silver Tribute […] The post 2016 Paul Silver Tribute Award appeared first on Alport Syndrom...
  • Cecil Alport: Naming the Syndrome
    In 1927, Dr. Cecil Alport published a paper in the British Medical Journal in which he discussed his study of several generations of a family with what earlier physicians had called “hereditary familial congenital haemorrhagic nephritis.” So how did this condition come to be named after Dr. Alport? Who Was Dr. Alport? Arthur Cecil Alport […] The post Cecil Alport: Naming the Syndrome appeared firs...
  • Update on HERA Phase 2 Study
    Regulus Therapeutics recently provided an update on the worldwide HERA study on Alport Syndrome. Temporary Pause in Enrollment As previously communicated by Regulus, the international Phase 2 study RG012-03, also known as the “HERA” study for patients with Alport Syndrome, is currently authorized by the United States Food and Drug Administration (FDA) and has been approved by institutional review ...
  • New Alport Syndrome Clinical Trial Announced
    Reata Pharmaceuticals announced plans to initiate a study using the drug bardoxolone methyl in the treatment of chronic kidney disease caused by Alport Syndrome. The clinical trial will study how bardoxolone methyl affects the chronic inflammation and decline in kidney function that are key features of Alport Syndrome. Almost all patients with Alport Syndrome develop […] The post New Alport Syndro...
  • The Renal Diet: Potassium
    A proper diet is crucial to maintaining proper renal and overall health. Potassium is a very important mineral in the body that most individuals are only vaguely aware of until their renal condition declines and are told by their doctor/dietitian to limit its intake. ASF asked Esther Berenhaut, RD, CSP, CSR to shed some light on […] The post The Renal Diet: Potassium appeared first on Alport Syndr...
  • In Memory of Theresa Cassidy
    It is with heavy hearts that we let you know we have lost a dedicated patient advocate, committed researcher, and friend. Theresa Cassidy, who was the Associate Program Director of the Alport Syndrome Treatments and Outcomes Registry (ASTOR), passed away after a long battle with Cancer. Theresa was a critical bridge between the academic and […] The post In Memory of Theresa Cassidy appeared first ...
  • HERA Interventional Clinical Study
    Regulus Therapeutics is pleased to announce the initiation of the HERA study, an interventional clinical study in Alport syndrome patients. The purpose of this research study is to evaluate the safety and effectiveness of an investigational drug (an anti-microRNA 21 called RG-012) compared to placebo as a treatment for patients with Alport syndrome. Alport syndrome patients […] The post HERA Inter...
  • Help Direct Alport Syndrome Research
    Over the past nine years, ASF has successfully created a landscape that encourages industry, academia and the government to invest in studying Alport Syndrome. The result can be seen in the increased number of potential therapies “in the pipeline” to treat Alport Syndrome. Now that we have increased the interest and investment, it is important […] The post Help Direct Alport Syndrome Research appe...

Out-Market Your Competitors?

Get complete competitive insights on over 2.2 million companies to drive your marketing strategy.

Create Free Account Log in

By signing up, you agree to the Terms of Service and Privacy Policy.

Out-Market Your Competitors

Get complete competitive insights on over 2.2 million companies to drive your marketing strategy.

Create Free Account

Already a user?  Log in

By signing up, you agree to the Terms of Service and Privacy Policy.