Aniridia Network UK
Aniridia Network UK
Blog Post
  • We are planning to change our name! We intend to drop the ‘UK’ and simply be ‘Aniridia Network’. The main reason is to be inclusive for people affected by aniridia in Ireland, and there are other benefits too. We want … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • We have a new Treasurer. Emily Nash took up the role at the start of March 2017. Trustees Katie, James and Martin voted to co-opt Emily on to the Board at their February meeting. The post had been vacant for … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • Matt rode his bike 408 miles from London to Worcestershire and back again, in one day to raise money for Aniridia Network UK. He set out at sunrise and rode as the temperature soared to 40°C. He retuned 15 hours … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • We are elated to announce the winner plus the awarding of a special prize in our Aniridia Day related poetry competition. “I was impressed with the outstanding talent.” said judge and new trustee Emily. We were delighted to receive 10 … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • Being married for 50 years is an achievement. This is the milestone that my parents achieved in March this year. My father has aniridia (as to the best of our knowledge did his father), as did his brother. When my … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • Write a poem about your experience of aniridia, then send it to us and you could win shopping vouchers worth £40! Join us in taking part in the international poetry competition to celebrate the first world Aniridia Day on 21 June. … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • Join us celebrating the first ever international Aniridia Day on 21st June 2017! What is it? It will be a exciting time to coordinate activities and improve understanding of the rare genetic eye condition aniridia.  Please take part in the campaigns: … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • Advice for creating a definitive source of information about a syndrome and the opportunity to be involved in Jeans For Genes Day were just some of the results of the latest event we attended. Aniridia Network (ANUK) Trustee James was among … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  •   A business has found an alternative way of raising money for our charity to shaking collection tins – shaking milk! The Pour House in Shrewsbury opened 18 months ago as a coffee house by day and cocktail bar by … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post

New blog articles detected.

  • First meeting in Ireland

    Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. 11am to 3:30pm, Saturday 8 April … Continue reading →

  • London meet-up 2016

    We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post

New blog articles detected.

  • What our logos looks like

    It occurred to us that some people will never have (clearly) seen the Aniridia Network UK logo designed in 2011. So here’s a description and explanation of the logo: The overall design is a 2 dimensional, stylised, aniridic eye, including … Continue reading →

  • Kids complete Mini Great North Run in aid of aniridia

    Four children, one with aniridia took part in this years Mini Great North Run to raise funds for us. Their generous sponsors gave £525 via JustGiving plus a £100 cheque, for them completing the 1.5 kilometre challenge which is open to 3 … Continue reading →

Aniridia Network UK
Aniridia Network UK
Blog Post
  • Dear random pedestrian, You never knew it but you really helped a disabled person today. You came to be walking in front of me, in a environment that I found tricky to navigate alone with my visual impairment. Thank you! … Continue reading →

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