Clinuvel Pharmaceuticals Ltd
Clinuvel Pharmaceuticals Ltd
YouTube Video

New YouTube videos detected.

  • A life in the shadow: erythropoietic protoporphyria (EPP)
    We don't realise the importance of light in our life, we take light for granted. Continuing and persistent burning pain, isolation and a lack of understanding from peers has a long term impact on patients diagnosed with erythropoietic protoporphyria (EPP). For Lyndal, 24, the disease has led to severe depression. EPP and sunlight -- an impossible task EPP can be defined as absolute light intol...
Clinuvel Pharmaceuticals Ltd
Clinuvel Pharmaceuticals Ltd
YouTube Video

New YouTube videos detected.

  • A life in the shadow: erythropoietic protoporphyria (EPP)
    We don't realise the importance of light in our life, we take light for granted. Continuing and persistent burning pain, isolation and a lack of understanding from peers has a long term impact on patients diagnosed with erythropoietic protoporphyria (EPP). For Lyndal, 24, the disease has led to severe depression. EPP and sunlight -- an impossible task EPP can be defined as absolute light...
  • Absolute light intolerance: Erythropoietic protoporphyria (EPP)
    http://www.clinuvel.com/skin-conditions/rare-skin-conditions/erythropoietic-protoporphyria Clinuvel is focused on Erythropoietic protoporphyria (EPP), a rare and severe UV/light related skin disorder. The Australian outdoor lifestyle has ingrained in us a distinct awareness and understanding of the dangers of sunlight and UV exposure. This unique insight makes knowledge of photodermatoses (U...
  • "The fear of what lay ahead" Erythropoietic Protoporphyria (EPP)
    http://www.clinuvel.com/skin-conditions/rare-skin-conditions/erythropoietic-protoporphyria Raising children with Erythropoietic Protoporphyria (EPP) is a traumatising experience, one which few parents are able to express or understand. Exposure of skin to light, particularly light in the blue spectrum (400 nanometers wavelengths and beyond), causes deep burning, intense pain and scarring ski...
  • Australian man with an unbearable genetic disease, Erythropoietic Protoporphyria (EPP)
    http://www.clinuvel.com/skin-conditions/rare-skin-conditions/erythropoietic-protoporphyria Adrian was diagnosed with the genetic disease Erythropoietic Protoporphyria (EPP) when he was 5. Exposure to light causes him excruciating pain. He has absolute light intolerance. EPP is characterised by the accumulation of toxic compounds in the body of patients. Exposing an EPP patients skin to light...
  • Clinuvel, improving quality of life. Photodynamic Therapy (PDT)
    SCENESSE® (afamelanotide) holds promise as a preventative pharmaceutical treatment, improving quality of life for patients with advanced stage bile duct cancer, who are eligible to undergo Photodynamic Therapy (PDT). http://www.clinuvel.com/skin-conditions/photodynamic-therapy-pdt-and-phototoxicity Clinuvel is committed to caring for patients who do not receive medical attention for light an...
  • "Clinical and regulatory goals"
    http://www.scenesse.com/ Clinuvel's senior management in regulatory affairs and clinical research discuss the development of Clinuvel's proprietary first-in-class drug, SCENESSE® (afamelanotide). Administered by physicians as a controlled-release resorbable implant, SCENESSE® (afamelanotide) is a preventative drug activating melanin pigmentation in the skin. Melanin provides a biological ...
  • "The golden age?"
    http://www.scenesse.com/ Clinuvel Non-Executive Chair Brenda Shanahan and Non-Executive Director Roger Aston discuss the progress of Clinuvel's clinical program with SCENESSE® (afamelanotide). Administered by physicians as a controlled-release resorbable implant, SCENESSE® (afamelanotide) is a preventative drug activating melanin pigmentation in the skin. Melanin provides a biological bar...
  • "Where no one has gone before"
    http://www.scenesse.com/ Clinuvel Non-Executive Director Jack Wood discusses commercialization. Clinuvel is developing a breakthrough photoprotective drug, SCENESSE® (afamelanotide), to be administered every 60 days. SCENESSE® (afamelanotide) is selective in its pharmacologic action by activating skin's own pigment, melanin . It is due to melanin that a physical barrier between skin and l...
  • Light and UV in Australia
    http://www.clinuvel.com/ Australians have a love for their outdoors and a great appreciation for sunshine. With our appreciation comes understanding, and with that understanding, a healthy respect of the sun. In Australia, sun safety is paramount and education starts early. Year round, Australians are exposed to high levels of UV; two in three Australians are expected to be diagnosed with sk...
Clinuvel Pharmaceuticals Ltd
Clinuvel Pharmaceuticals Ltd
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